Inspire2live Annual Congress

Annual Congress 7-9 February 2018 – Amsterdam

Inspire2Live is the international movement founded by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action (30M Euros) and many others, such as the Belgian Ven2-4Cancer. All these charities are targeted towards a single goal: Getting Cancer in control within 10 years. That is still our main objective. To achieve this, we also strive to change and improve the way in which the global cancer research is organised and executed. This is our main scientific program, Understanding Life.

Nowadays, Inspire2live is mainly active as a Patient Advocacy Platform, bringing together patients, doctors, scientists and others to work on the challenge to get cancer under control.

Inspire2live's next annual congress ‘The countless small deeds of the unknown people’ will be held in Amsterdam in 2018.

Visit Inspire2live for more information

Wednesday,  February 7, 2018

Location:  ‘Restaurant Brooklyn’, NDSM Wharf, NDSM-Plein 30, Amsterdam
(If you take the Ferry take the one to NDSM Werf.)

18.00 – 19.00      
Drinks & welcome by Inspire2Live Patient Advocate Linda Burger

19.00 – 21.30      
Welcome dinner

Opening speech by Erik Gerritsen, Secretary General Dutch ministry of health.

Thursday, February 8, 2018

Location:  ‘Under Current’, NDSM Wharf, Papaverweg 265, 1032 KE Amsterdam
If you take the Ferry take the one to ‘NDSM Werf’.

08.45 - 09.15      
Registration with coffee and tea

11.30 – 12.00      
Designing Tools for Navigating between our Health    Stephen Friend (Sage) and Disease: Symptom Predictions and Return of Agency
 
12.00 – 12.30      
Rapid fire talks of participants. What happened in my organization? What did we realize to change and how did we do it? In speed presentations of 5 minutes inspirational participants talk about their way of refurnishing the organization they are part of.

Isaac Bullock Kintu (Accenture), Willem Ernst Herter (Pacmed), Marta Fernandez (Fundacion
Josep Carreras), Barbara Moss (Colon Cancer UK), Tim van Veenendaal (Manus VR), Susan Gabriëls.

12.30 – 13.00      
Panel discussion:
‘Why did we realized this change and how?’               
Ian Banks (vice President ECC)
Panel members: Seun Adebiyi (Bone marrow registry), Maurice Wiegman (Passiezonderbeperking), Natacha Bolaños (Lymphoma Coalition Europe), Ronald Brus (myTomorrows)  & Carmen Loiselle (McGill University Montreal).

13.00 – 17.30      
Take away lunch and groups at work in breakout sessions.

Group A:
‘Empathy is what can – will – change the world. Simulation is the best way to get a point across, especially to children.’ This group stays at Under Current and participates in a workshop lead by medical doctor Parag Mankeekar (Neetisolutions–Mumbay) & Ilona Schelle.

Group B:
‘The need for randomized trials: can we accelerate the translation of novel targeted and immunotherapies  to the clinic?’ This group visits the VUMC/Cancer  Center Amsterdam and works with prof. dr. Bob Pinedo, prof. dr. Tanja de Gruijl & prof. dr. Rik Scheper & Margot Kitzen

Group C:
‘The healthy city of Amsterdam’. This group visits the headquarter of Amsterdam
Noord and works with professor dr. Jaap Seidell (VUMC) & Barbara van Kesteren.

Group D:
‘What is the role of (healthy) gut flora in the prevention and treatment of cancer?’ This group visits Winclove probiotics in Amsterdam Noord and works with Maarten Pekelharing (Winclove) & Guan Schellekens.

Group E:
‘Children with cancer and the need of patients and their parents’. This group visits the
VUMC and works with prof. dr. Gert Jan Kaspers (Children Hospital) & Jozef Duivesteijn.

17.30 – 18.00      
Report back and presentations of the plan of actions by the groups

18.30 – 21.30     
Diner at ‘Restaurant Brooklyn’, NDSM Wharf, NDSM-Plein 30, Amsterdam
(If you take the Ferry take the one to NDSM Werf.)

Music performed by patient advocate Mark Moss.

Presentation of the Inspire2Live Patient Advocate Hero of Cancer Award.

Friday, February 9 2018

Location: ‘Under Current’, NDSM Wharf, Papaverweg 265, 1032 KE Amsterdam
If you take the Ferry take the one to NDSM Werf.

8.00 - 8.30           
Registration with coffee and tea

8.30 - 8.45           
Welcome by the conference chairs                              
Rebecca Malby & Piarella Peralta

8.45 – 9.15          
Change in Amsterdam – how is it done?                     
Erik Teunissen (Dutch Central Bank)

9.15 – 9.45          
Data is a gift. Deal with it that way                               
Kadija Ferryman (Data & Soc. Res. Inst.)

9.45 – 10.00        
How unknown people take agency over their data?   
Gaston Remmers (Inspire2Live) (Introduction to the beginners mind sessions)

10.00 – 10.30      
Beginners mind & experienced hand,                          
Ernst Hafen (ETH, Zürich) ETH, Zürich + beginners minds

10.30 – 11.00      
Beginners mind & experienced hand,                          
James N’Dow (Univ. Aberdeen) University of Aberdeen + beginners minds

11.00 - 11.30      
Coffee, tea and networking

11.30 – 12.00      
Beginners mind & experienced hand                         
Dik van Gent (ErasmusMC) ErasmusMC, Rotterdam + beginners minds

12.00 – 12.30      
Beginners mind & experienced hand,                          
Parag Mankeekar (Neetisolutions) Neetisolutions, Mumbay + beginners minds

12.30 - 13.00      
Lunch

13.00 – 16.00      
Groups at work in breakout sessions.

16.00 – 16.30      
Report back and presentations of the plan of actions by the groups

16.30 – 17.00      
Reflections – end of conference                                    
Ilona Schelle & Peter Kapitein