Search Tag: Peter Kapitein

2024 26 Jan

Peter Kapitein , founder of Inspire2Live and a renowned patient advocate, has been appointed to the Advisory Board of ASCERTAIN.  Peter emphasises, "inequity in access to treatments is a violation of human rights".   As a patient advocate, Peter is dedicated to connecting patients, researchers, clinicians, industry, payers, and regulators...Read more

2018 07 Nov

Challenges and opportunities for keeping engaged. With patient engagement there comes increasing responsibility – on the patient, their family and the provider. HealthManagement.org spoke to four leading patient advocates for their views on approaching patient engagement and the challenges that lie ahead. Dave deBronkart...Read more

2018 23 May

What could the new data protection law mean for health sector leaders? The European Union’s (EU) General Data Protection Regulation (GDPR) will take effect on 25 May 2018, replacing the 1995 Data Protection Directive. Directly binding and applicable in all EU states, the GDPR aims to protect the data and privacy of the European population by giving...Read more

2017 07 Jun

I was struck by a press announcement of the United States Food and Drug Administration of 23 May 2017: ‘ FDA approves first cancer treatment for any solid tumour with a specific genetic feature ’   This is good news. Because it means that the knowledge that science has given us many years ago now is accepted by the regulator for the first time....Read more