Dr. H.C. Peter Kapitein
Health Management
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Biography
Peter connects patients, researchers and clinicians to further research, treatments and care; in the Netherlands as well as internationally. He organises congresses, lobbies the matrix of public authorities, health care organisations, insurance companies and health research institutes. Peter also gives lectures and talks to help patients and society to fight cancer where possible and live with cancer with a good quality of life. He is a writer of blogs, articles and books that also contributes to these topics.
Positions
President, Patient Advocate Inspire2Live, Amsterdam, the Netherlands
Inspire2Live has been created to empower people to convert the sense of powerlessness, caused by cancer, into one of strength. Inspire2Live is founded on the absolute belief that one can attain the greatest possible satisfaction by putting their heart and soul into helping others. Its motto is “Never, ever quit!”.
Social profiles
Featured in HealthManagement.org
2022 01 Jul
Advocates, Let’s Make It Our Problem!
I have lymphoma. Is that my problem or that of my physician? Or perhaps the problem of research and industry? It is indeed my problem and I need my physician badly. She can only do her work when good science is being done and when the healthcare industry...
2022 06 Apr
Moving Evidence into Practice
On 11 November 2021, Inspire2Live organised a congress in Amsterdam to determine the best patient screening, diagnosis, and treatment techniques for prostate cancer and how we can offer them to everyone. How can we quickly implement evidence-based innovations...
2022 04 Feb
"We Can Do Better!"
When Inspire2Live organised its first Annual Congress in 2011, José Baselga was one of the speakers, and he opened his speech with the following statement: “We are not meant to be here for 1- or 2-months’ life extension. We can do better!” It...
2021 04 Nov
Quality of Life for the Global Patient
In our world live 7.8 billion people. Pharma only focuses on cancer treatments for 1.6 billion people. How can the other 6.2 billion people hold no interest for pharma? Even from a commercial perspective, it is unwise to neglect these people. And don’t...
2021 28 Sep
Awareness, Education, Prevention and Government
In September of this year, our group of international patient advocates and scholar-activists had a congress at the Royal Netherlands Academy of Arts and Sciences. We had several good discussions about prevention, breast cancer prevention, and early...
2021 26 Jul
What About Post-Corona?
Is there a time after COVID-19? Do you regularly hear the question of what we will do after COVID-19? Or what should we do? This is a strange question, because there will be no time after Coronavirus. Corona is an endemic virus, that is among us...
2021 21 Jun
We Can Eradicate Cervical Cancer!
Scientific knowledge eradicated smallpox, a painful and disfiguring disease which killed 300 million people in the 20th century alone. In case anyone has skimmed over this feat of moral greatness, let me say it again: Scientific knowledge eradicated...
2021 03 May
Patient’s Voice to Cancel Cancer: When Accountability Becomes Responsibility
In the past decades something happened in healthcare that doesn’t benefit patients. Actually, it is what we patient advocates call ‘Dying is safer’. For some of the stakeholders in the medical industrial complex it is safer to let patients die...
2021 02 Apr
Patient’s Voice to Cancel Cancer: Autonomy for Patient and Oncologist – That Helps
Let’s start with a quip. When you want to become an oncologist, you only need three or four years of primary school. You need to be able to read and write. The pathologist will tell you what type of cancer the patient has, you can read in the...
2021 01 Mar
Patients’ Voice to Cancel Cancer: From Shooting In the Dark We Can Become a Sniper
“Cancer is a mobile disease. It changes while you look at it. Treat it like tuberculosis; 4 drugs for one year, at the same time!” Professor David Tuveson, CSHL We do not execute what we already know! Patients...
2021 15 Feb
Prevent or Treat in Latin America
In Latin America there is a big need for prevention as many people do not have access to treatment due to high costs. Prevention not only in terms of becoming sick but also of not paying more than necessary. The situation varies across the continent,...
2020 12 Nov
Is Patient Really Empowered in Medical Industrial Complex?
A veteran patient advocate questions some of the hyped patient-engagement concepts and the reality of their practical applications within the ‘medical industrial complex’, and offers some strategies to change ‘the way we work’. Key Points...
2020 28 Sep
Risks, Costs, Benefits and Trust in Healthcare - Why and When Do We Trust?
With artificial intelligence and personalised medicine playing an increasingly important role in today’s healthcare, one cannot help but wonder about the regulation of these fields. An expert analyses the pros and cons of the ‘checks and balances’ system...
2019 26 Aug
‘The Death of Cancer’ - The Patient Perspective
Summary: Cancer affects everybody's life at some point. ‘The Death of Cancer,' written by one of oncology's leading figures, Dr Vincent T. DeVita, documents his own journey for the cure. Dr Peter Kapitein gives his personal review on the book....
2018 22 Sep
The need and speed of cooperation instead of competition in research
Questions that need to be answered taking into account benefits for the patient. Academic rivalry is not in the patient’s interest, and as long as patients are not involved in healthcare and healthcare research on an equal basis there will...
2018 27 Jun
Share our data: GDPR and the patient view
The European Union’s (EU) General Data Protection Regulation (GDPR) took effect on 25 May. Directly binding and applicable in all EU states, the GDPR aims to protect the data and privacy of the European population by giving control back to citizens...
2018 23 May
General Data Protection Regulation and healthcare
What could the new data protection law mean for health sector leaders? The European Union’s (EU) General Data Protection Regulation (GDPR) will take effect on 25 May 2018, replacing the 1995 Data Protection Directive. Directly binding and applicable in...
2018 20 Feb
The payer determines, but it is not the patient
In healthcare patients are not consumers with the economic power they have in other markets, but the arguments for patient involvement are compelling. "Healthcare is like dog food business." Here we hear an American explaining that in healthcare,...
2017 19 Sep
Responsible research innovation – heard of that before?
A reminder about who is at the centre of the complex healthcare hierarchy and industry – the patient. In May I was present at the excellent congress “Responsible Research and Innovation in the Health Industry”, organised among others by...
2017 07 Jun
There Might Be Too Much Money In Healthcare
I was struck by a press announcement of the United States Food and Drug Administration of 23 May 2017: ‘ FDA approves first cancer treatment for any solid tumour with a specific genetic feature ’ This is good news. Because it means that the...
2017 07 May
Peter Kapitein
Patient Advocate, Inspire2Live, Amsterdam, the Netherlands If about us, not without us Healthcare exists because we patients exist and therefore we should not only be asked about what we want, we should also...
2017 08 Mar
Why Don’t We Introduce Patients Into Healthcare Management?
“Good morning Mr. Smith. Good to see you, how are you doing? You’re looking for a new car? That’s good news. We decided that it’s going to be a Ford Focus, ST, 2.0 Eco-boost, 184 KW, 6-gear. Let’s see in our stock if there is a possibility for you to...
2017 16 Feb
Does More Value Naturally Lead to Better Care?
Value-based healthcare (VBHC) starts with the patient and uses patient-oriented outcomes to improve care. Not everything can be expressed in figures: psychological and sociological factors play a role as well. The medical-industrial complex does not...